Welcome to MND Association - Gloucestershire branch

This site is intended to help those living with MND in the county, raise awareness of MND, develop our fundraising activities, and to promote those things which make it all possible. We welcome your input to these aims. Please contact us with your news, your activities, or your ideas.

We invite you to come to any or all of our regular Support Group Meetings. To find out more information about what is happening at our meetings see our Events Calendar.

Lauren Wells – MND Clinical Coordinator Gloucestershire

Gloucester Hospitals NHS Foundation Trust

Email: ghn-tr.glosmnd@nhs.net or Telephone Advice Line: 0300 4226 404

For urgent help or support please contact:

MND Connect, the helpline is on 03457 626262 or email mndconnect@mndassociation.org

People living with a terminal illness such as MND should be able to claim benefits without having to fill in a long form, attend a face-to-face assessment, or wait weeks for their benefits to arrive. Find out more about how you can support the campaign.

Where can I find more information?

About MND

If you are living with or close to someone with motor neurone disease (MND), the main MND Association website has a wealth of knowledge, including how the disease is diagnosed, and how to manage daily life, access support and find information.

Living with MND

The challenges can feel overwhelming, but support and planning ahead can help you maintain the best possible quality of life. The MND Association website has a number of resources.

What help is available?

Much can be done to help you achieve the best possible quality of life and manage the extra costs of care.

Information resources

There is an extensive collection of  resources and publications about MND that can be downloaded, or you can order printed copies.

Support

For some, knowing there is a clear cause of their symptoms can come as a relief. For others, the diagnosis is like a thunderbolt.

Whatever reaction you have is completely normal and a whole range of advice, support and information is available. Whatever your circumstances, you need not feel alone, we are here to help.

For more information visit the Newly Diagnosed section of the MND Association website or contact MND Connect, the helpline is on 03457 626262 or email mndconnect@mndassociation.org

Research

“Our vision is a world free from MND. The MND Association funds and promotes research that leads us to new understanding and treatments, and brings us closer to a cure for MND.”

Dr Brian Dickie, Director of Research Development, MND Association

Read more details about what is happening in the world of MND Research on the main MND website.

Campaigns

PIP Summer of Action briefing

What is the PIP Summer of Action? The Summer of Action is a campaign from the Disability Benefits Consortium (DBC)[i] to lobby MPs on the issue of Personal Independence Payments[ii] (PIP). Volunteers from a variety of charities will get involved, each talking to their own MPs about personal experiences of claiming PIP, and how MPs

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MND Costs

People with MND are being forced to fund care themselves and wipe out their savings because: Benefits and entitlements are not enough to cover the costs MND incurs. Accessing financial support is too difficult and overwhelmingly complex to apply for and the system can also be too slow to respond. This is resulting in some

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News

Government includes Motor Neurone Disease under the Extremely Vulnerable Group

Today the Motor Neurone Disease Association has received the welcome news that the Government includes all people with Motor Neurone Disease under the Extremely Vulnerable Group to be shielded for 12 weeks. This effectively means that a person with MND and their family living with them should be shielded from the outside world as far

AGM, support groups and events have been cancelled until further notice

Dear Members and Friends, This is a challenging time for us as individuals, as an Association and as a country. Due to the latest COVID-19 advice from governments around the world, we are following guidelines and confirm that our forthcoming A.G.M. on 20th April and Support Group Meetings are cancelled with immediate effect and will

Coronavirus and MND

We are aware that the situation surrounding the spread of coronavirus may be causing people affected by motor neurone disease (MND) concern. The Motor Neurone Disease Association has produced an information page giving plenty of advice for patients and carers. You can access the page here If you would like to speak to someone MND Connect