Welcome to MND Association - Gloucestershire branch

This site is intended to help those living with MND in the county, raise awareness of MND, develop our fundraising activities, and to promote those things which make it all possible. We welcome your input to these aims. Please contact us with your news, your activities, or your ideas.

We invite you to come to any or all of our regular Support Group Meetings. To find out more information about what is happening at our meetings see our Events Calendar.

For urgent help or support please contact:

MND Connect, the helpline is on 03457 626262 or email mndconnect@mndassociation.org

People living with a terminal illness such as MND should be able to claim benefits without having to fill in a long form, attend a face-to-face assessment, or wait weeks for their benefits to arrive. Find out more about how you can support the campaign.

Where can I find more information?

About MND

If you are living with or close to someone with motor neurone disease (MND), the main MND Association website has a wealth of knowledge, including how the disease is diagnosed, and how to manage daily life, access support and find information.

Living with MND

The challenges can feel overwhelming, but support and planning ahead can help you maintain the best possible quality of life. The MND Association website has a number of resources.

What help is available?

Much can be done to help you achieve the best possible quality of life and manage the extra costs of care.

Information resources

There is an extensive collection of  resources and publications about MND that can be downloaded, or you can order printed copies.

Support

For some, knowing there is a clear cause of their symptoms can come as a relief. For others, the diagnosis is like a thunderbolt.

Whatever reaction you have is completely normal and a whole range of advice, support and information is available. Whatever your circumstances, you need not feel alone, we are here to help.

For more information visit the Newly Diagnosed section of the MND Association website or contact MND Connect, the helpline is on 03457 626262 or email mndconnect@mndassociation.org

Research

“Our vision is a world free from MND. The MND Association funds and promotes research that leads us to new understanding and treatments, and brings us closer to a cure for MND.”

Dr Brian Dickie, Director of Research Development, MND Association

Read more details about what is happening in the world of MND Research on the main MND website.

Campaigns

PIP Summer of Action briefing

What is the PIP Summer of Action? The Summer of Action is a campaign from the Disability Benefits Consortium (DBC)[i] to lobby MPs on the issue of Personal Independence Payments[ii] (PIP). Volunteers from a variety of charities will get involved, each talking to their own MPs about personal experiences of claiming PIP, and how MPs

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MND Costs

People with MND are being forced to fund care themselves and wipe out their savings because: Benefits and entitlements are not enough to cover the costs MND incurs. Accessing financial support is too difficult and overwhelmingly complex to apply for and the system can also be too slow to respond. This is resulting in some

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News

Christmas Party 7th Dec 12-2pm

Please join us on Saturday 7th December at St Andrews Church GL3 2JT from 12pm until 2pm for our annual Christmas Party! We would love to see you all there for some festive fun. 🎄

Policy and Campaigns RoundUp October 2019

Read the latest ‘Policy & Campaigns Round-up’ from July 2019.

Act To Adapt Full Report 2019

On 26 September we launched the new Act to Adapt report, highlighting the challenges that people with MND face when it comes to living independently and safely in their own homes. The report sets out a range of recommendations to improve the current situation and includes examples of good practice from across the country demonstrating